26: Annie B. Garman – Discovering Your Daughter Has Hypo Plastic Right Heart Syndrome While Living In Iceland.

Annie talks about finding out that her unborn daughter was going to have congenital heart disease while her and her family were living in Iceland.   She talks about having to return home after learning about her daughter’s heart defect.   Also, she shares her emotions after learning about the heart defect.   Annie talks…

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25. Rebecca Mannion -Her Daughter And Dilated Cardiomyopathy

Rebecca shares her story about her daughter who has Dilated Cardiomyopathy. She talks about how her daughter’s heart disease was not discovered until she was four months old. Plus, Rebecca talks about her journey in the hospital and having her daughter placed on the heart transplant list. Rebecca shares her experience of having her daughter…

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24. Dr. Rebecca Scharf- Understanding How Children Develop Who Have Medical Complexities And Special Health Care Needs!

Dr. Rebecca Scharf is a developmental pediatrician at the University of Virginia Children’s Hospital.  She talks about the 3 aspects of how she helps children with medical complexities such as critical care, education, and research. Discusses the 4 different clinics that she oversees that help children. How a family friend who was a doctor in…

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23. Molly McMunn Korte- How Autism Impacts Her Almost Two Year Old Son.

Molly talks about her son and when he was first diagnosed with autism. How their son’s diagnoses impacted her and her husband. She reveals some of the symptoms that that her son displayed prior to being officially diagnosed with autism. Plus, she talks about the actual appointment and how the doctor diagnosed her son with…

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22. Annaleci Lamantia- The Story Of A Teenager With Truncus Arteriosus Type 2

Annaleci shares her story about growing up with congenital heart disease known as Truncus Arteriosus Type 2 and how it has affected her over the years. She discusses her parents and how they have helped her throughout her life. She shares how she beat the odds of surviving her first heart surgery. Annaleci describes her…

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21. Lauren Gray – Purpose Driven Because of Congenital Heart Disease

Lauren shares her story and her perspective as an adult who has lived with congenital heart disease her entire life. Lauren talks about: How after she was born she was first diagnosed with congenital heart disease. Lauren talks about her first surgery. How growing up with congenital heart disease affected her in school, activities and…

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20. Danielle Love- Caring For Her Son Who Has Spastic Cerebral Palsy.

Danielle shares her story about her son who has spastic cerebral palsy.    Danielle talks about being diagnosed with an autoimmune disease called Graves’Disease. She shares how Graves’ Disease led to a thyroid storm and how the thyroid storm affected her.   When Danielle was 32 weeks pregnant the ultrasound showed that something was different, but doctors weren’t sure…

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19. Dr. Kenneth Norwood- Helping Children With Complex Medical Challenges Develop Cognitively, Physically, Emotionally, and Socially.

Dr. Norwood, a developmental pediatrician, focuses on helping children who either have serious ongoing medical challenges or at some point in the child’s life has faced a serious medical challenge. Some of the topics that Dr. Norwood discusses are: Why he became a developmental pediatrician What the difference is between a pediatrician and a developmental…

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18: Brooke Wilkerson- Caring For Her Son Who Has Tetralogy of Fallot  

In this episode, Brooke shares her story about her son Miles who has Tetralogy of Fallot.  Brooke talks about: How she first discovered Miles was going to have a congenital heart defect.  The challenges of diagnosing the heart condition and then delivering Miles.  She talks about the events leading up to Miles’ first heart surgery.…

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17. Meghan Wagoner- A NICU Nurse Talks About Caring For Newborn Babies In Critical Condition.

http://traffic.libsyn.com/walkingwithfamilies/Walking_With_Families_Episode_17_Meghan_Wagoner.mp3   In this podcast episode, Meghan Wagoner, who is a NICU nurse talks about caring for newborn babies in critical condition that are in the neonatal intensive care unit. She talks about: -Why she became a nurse. -The training involved in care for babies in the NICU. -The difference between the care of a…

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