36: Tammy Thomas – National Board President of the Children’s Heart Foundation and Parent of a 22 Year Old CHD Survivor!

On this episode of the podcast, Tammy shares her journey with CHD in regards to her son and how it led her to working with the Children’s Heart Foundation.  During this episode:  Tammy shares her story about her 22-year-old son who has congenital heart disease.  Tammy talks about when her son was first diagnosed with congenital heart disease and…

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35: Jennifer DeBouver-Losing a Child to CHD and Helping Other CHD Parents Who Are Experiencing Loss!

This week on the podcast, Jennifer talks about losing her first child at 27 weeks in the pregnancy and then losing her second child to CHD. She talks about how the loss of her two children motivated her to help other families who have lost their child. Plus, she now educates parents about blood clots in…

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34: Amy Mast Basken- How Her Son, Who Has CHD, Inspired Her To Start The Pediatric Congenital Heart Association.

Amy shares her story about her son who was not diagnosed with CHD until after he was discharged from the hospital.  She talks about his heart surgery and his time in the hospital.  She also talks about caring for her son once he was home.  She talks about the potential future heart procedures that her son may need.  Further,…

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33: Dr. Thomas L’Ecuyer -A Pediatric Cardiologists Who Specializes In Heart Transplants For Children.

Dr. Thomas L’Ecuyer talks about how he helps children who need a heart transplant. He describes the entire heart transplant process from initially evaluating the child, through the child’s heart transplant, and then caring for the child after the transplant. Dr. L’Ecuyer talks about what inspired him to become a pediatric cardiologist. He also discusses…

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32: Monica Rogers: Congenital Heart Disease Survivor, Pediatric Home Health Care & NICU Nurse, and Mom to 3 Children – one of whom was a Preemie, and one who is Autistic!

This week on the podcast we chat with Monica Rodgers, an adult who was born with congenital heart disease.  Monica talks about first being diagnosed with congenital heart disease as a child, her first heart surgery, and what she remembers about her hospital stay.  She talks about growing up with CHD and how it affected her, what her…

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31: Amy Fields- Shares Her Story About Adopting Two Children With Special Needs

In this episode on the podcast, Amy Fields talks about adopting two children with special needs.  Here are some of the topics Amy discusses:  She talks about what inspired her to adopt two children.  How her son’s addiction at birth to methamphetamines affects him today. She talks about the types of therapy her son receives and how he manages in…

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30: Key Dunston – Shares Her Story About Her Daughter Who Was Born During Her 28th Week Of The Pregnancy And Who Weighed Only 3 Pounds.

Key talks about how her daughter was born during her 28th week of pregnancy. She talks about the challenges her daughter faced after she was born. She also talks about the stress of being in the NICU for 6 weeks. Key shares how she spent her time while in the NICU. She talks about how…

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29: Melody Johnson Shares Her Daughter’s Experience: A Life Saving Kidney and Liver Transplant

In this episode Melody Johnson shares the story of her daughter’s kidney and liver transplant. Melody shares her daughter’s diagnosis with Polycystic Liver Disease at 6 months old, with a subsequent diagnosis of liver fibrosis at age 1. She talks about how kidney and liver failure led her daughter to have high blood pressure, and…

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28: Dr. Sara Rasmussen-A Pediatric Surgeon Shares Why She Is Motivated To Make A Difference In So Many Children’s Lives.

In this episode, Dr. Sara Rasmussen talks about her job as a pediatric surgeon and why she is so driven to make a huge impact on so many children and their family’s lives. Dr. Rasmussen shares: What inspired her to become a pediatric surgeon. How she spends her time each day. UVA recently partnered with…

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27: Dr. Kimberly Dunsmore – Caring For Children With Cancer And Blood Disorders.

Dr. Dunsmore treats children for any type of disease that has to do with the blood or any type of cancer Dr. Dunsmore shares that between 10,000 and 12,000 children will be diagnosed with cancer each year. This represents an increase in diagnosis rates since tracking first began, but survival rates have increased as well.…

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