46: Melody Nuttall- Anencephaly and Making The Most Of Life To Help Other Children and Families.

On this podcast episode Melody shares her story about her daughter Lailah Joy Heaven who was born with Anencephaly. She talks about when she first learned about her daughter’s condition during the pregnancy. She describes in great detail the birth of her daughter and the planning process of donating her daughter’s organs. In addition, she…

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45: Meagan Nash- Down Syndrome And Changing People’s Perceptions Concerning Children With Special Needs

On this week’s podcast, Meagan Nash talks about her son, who has down syndrome and how both of them are changing people’s perception concerning children with special needs. Meagan talks about her pregnancy and when her son was first diagnosed with down syndrome. She talks about her delivery and hospital stay. Plus, she talks about…

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44. Kathy McClelland – Cri du Chat Syndrome and Beauty In Broken Dreams 

On this podcast, Kathy talks about her son who has Cri du Chat Syndrome.  Kathy talks about her pregnancy and how there were symptoms and risks during her pregnancy. She describes her son’s birth and his noticeable “cat-like cry”. She talks about the challenges of her child’s hospital stay. Kathy discusses the challenges of parenting her 3-year-old son,…

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43: Celeste Brown-Discovering Your Child Has Congenital Heart Disease When She Is 3 Years Old.

On this podcast, Celeste shares her story of how her daughter was diagnosed with Congenital Heart Disease (“CHD”) at the age of 3. She talks about the events that led up to her daughter being diagnosed with CHD. Celeste then describes how within a week of being diagnosed her daughter had heart surgery. She talks…

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42: Ellen Stumbo – Advocating for Children With Special Needs While Raising Two Daughters, One With Down Syndrome and One With Cerebral Palsy. 

On this podcast, Ellen Stumbo shares the story of her two daughters – one child who has Down Syndrome, and an adopted child who has cerebral palsy.  Ellen talks about her daughter and how cerebral palsy has effected her.  She discusses her daughter’s biggest challenge with cerebral palsy – the emotional and relational aspect of interacting…

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41: Kristie Klagges -Persevering Through 5 Heart Surgeries And A Heart Transplant.

Kristie shares her journey and how she has overcome so many challenges living with a rare form of congenital heart disease known as Shone’s Complex. Kristie shares:  How she only had a 5% chance of surviving after her first heart surgery at several days old.  Plus, she talks about going through her second heart surgery…

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40: Dana Laukhuf – Congenital Heart Disease Survivor, Who Is Raising 3 Children With CHD.

On this podcast, Dana shares her story about growing up with Tetralogy of Fallot and how all 3 of her children have congenital heart disease. She talks about growing up with CHD, her surgeries, and her experiences at the hospitals. Plus, she describes the conditions of each of her children’s heart disease. She shares how…

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39: Allyson Drake – Parents and Children Working Through The Pain of Grief.

In this episode, Allyson Drake talks about helping parents and children through the grief process after losing a child or loved one. Alyson shares: What led her to start her organization Full Circle Grief. What the 4 tasks of grief are that everyone must work through after losing a loved one or a child. Plus, Allyson…

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38: Jenny Samuels-Caring For Her Son With Type 1 Diabetes

On this episode of the podcast, Jenny Samuels shares her story about her son who has Type 1 Diabetes. Jenny talks about her son, his initial stay in the hospital, and how he was diagnosed with juvenile diabetes. She talks about her daily routine with her son and how diabetes has impacted the family. Plus,…

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37: Amy Cantwell – Insights From A Flight Paramedic Transporting Critically Ill And Injured Patients.

Amy shares her journey about what she does as a flight paramedic and how she transports children in critical condition via helicopter.  She reveals the type of patients that she transports most often.  She discusses some of the environmental challenges that can prevent the helicopter from taking off. She compares and contrasts transporting children versus transporting adults.…

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