24. Dr. Rebecca Scharf- Understanding How Children Develop Who Have Medical Complexities And Special Health Care Needs!

Dr. Rebecca Scharf is a developmental pediatrician at the University of Virginia Children's Hospital. 

She talks about the 3 aspects of how she helps children with medical complexities such as critical care, education, and research.

Discusses the 4 different clinics that she oversees that help children.

How a family friend who was a doctor in the Congo inspired her to become a pediatrician.

Talks about UVA's Center For Global Health and how the research benefits children around the globe.

Discusses how the first 1,000 days from conception are critical to lifelong development.

Plus, Dr. Scharff talks about the developmental challenges faced by children who have been hospitalized for long periods of time.

The importance of a g-tube to help children receive adequate consistent nutrition, and how it affects them developmentally.

Moreover, Dr. Scharff discusses a developmental study on children's with congenital heart disease and their long-term developmental outcome.

 

Resources

Early Intervention: http://www.infantva.org/

Parents as Teachers: They have a great curriculum for promoting child development at home http://www.parentsasteachers.org/

CHIP in Charlottesville: they do wonderful work supporting parents.  http://www.jachip.org/.

The International Rescue Committee helps many of the families in the International Child Development Clinic transition: https://www.rescue.org/united-states/charlottesville-va

The Muscular Dystrophy Association provides support to clinic and many of our families: https://www.mda.org/

They also have summer camp: https://www.mda.org/services/mda-summer-camp

CureSMA is a great organization supporting families who have a child with Spinal Muscular Atrophy: http://www.curesma.org/

The Spina Bifida Association: http://spinabifidaassociation.org/

Also has camps: http://spinabifidaassociation.org/camps/

 

Resources for CHD:

Mended Little Hearts: www.http://mendedlittlehearts.org/

Beads of Courage: Http://www.beadsofcourage.org/

Heart Heroes Http://www.heartheroes.org/

Feel Better Friends: http://fbfdolls.org/

 

Here is a list of Dr. Scharf's  four clinics:

UVA Children’s Heart Center Neurodevelopmental Follow-up Program

The American Heart Association and American Academy of Pediatrics recommend that all children with complex congenital heart disease receive regular developmental monitoring.  In this clinic, developmental progress, growth, learning and behavior in children are monitored over time and children are referred for services and specific evaluations as needed.

Multidisciplinary team available:  Developmental Pediatrics, Pediatric Cardiology, Physical Therapy, Occupational Therapy, Speech/Language/Feeding Therapy, Nutrition, Education, Psychology, Social Work, Nursing.

Physicians: Rebecca Scharf and Kenneth Norwood

Nurse Practitioners: Karri Bishop and Lisa Letzkus

Location: UVA Children’s Hospital Battle Building, 4th, 5th, and 6th floors.

 

The International Child Development Clinic

In the International Child Development Clinic, children who have come to the United States from abroad who have any developmental concerns are seen.  In this clinic we follow children who have been adopted internationally, who move to the United States or who have come as refugees.  Reasons for referral include developmental delay, learning concerns, attention, behavior, physical disabilities, and other developmental concerns.

Multidisciplinary team available:  Developmental Pediatrics, Physical Therapy, Occupational Therapy, Speech/Language/Feeding Therapy, Nutrition, Education, Psychology, Social Work, Nursing.

Physician: Rebecca Scharf

Nurse Practitioner: Stephanie McNerney

Location: UVA Children’s Hospital Battle Building, 4th and 5th floors.

 

Myelomeningocele Clinic

Children with Myelomeningocele (Spina Bifida), Spinal Dysraphisms or Spinal Cord Injuries are followed in our pediatric Myelomeningocele Clinic.  Here children receive full multi-disciplinary care and their growth, development and health are monitored closely.

Multidisciplinary team available:  Developmental Pediatrics, Urology, Orthopedics, Physical Medicine & Rehabilitation, Prosthetics/Orthotics, Physical Therapy, Occupational Therapy, Speech/Language/Feeding Therapy, Nutrition, Education, Psychology, Social Work, Dental, Nursing.

Physicians: Rebecca Scharf and Christopher Lunsford and Valentina Intagliata

Nurse Practitioner: Alison Sturgill

Location: UVA Children’s Hospital Battle Building, 4th floor.

 

Pediatric Neuromuscular & Muscular Dystrophy Association Care Center

Children with Neuromuscular Disorders are followed in our pediatric Neuromuscular and Muscular Dystrophy Care Center.  We see children with diagnoses including: Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy (DMD), Becker Muscular Dystrophy (BMD), Limb Girdle Muscular Dystrophy (LGMD), Fascioscapulohumeral Muscular Dystrophy (FSH MD), Friedreich’s Ataxia (FA), Charcot Marie Tooth (CMT), Myotonic Dystrophy (DM1), Congenital Myopathies, Collagen VI deficiencies and a range of other muscle concerns.  Children receive full multi-disciplinary care and their growth, development and health are monitored closely.

Multidisciplinary team available:  Developmental Pediatrics, Neuromuscular Neurology, Cardiology, Pulmonology, Orthopedics, Physical Medicine & Rehabilitation, Prosthetics/Orthotics, Physical Therapy, Occupational Therapy, Speech/Language/Feeding Therapy, Nutrition, Education, Psychology, Social Work, Dental, Nursing and Genetic Counseling.

Physicians: Rebecca Scharf and Kelly Gwathmey

Nurse Practitioner: Alison Sturgill

Location: UVA Children’s Hospital Battle Building, 4th floor.

 

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