18: Brooke Wilkerson- Caring For Her Son Who Has Tetralogy of Fallot  

In this episode, Brooke shares her story about her son Miles who has Tetralogy of Fallot. 

Brooke talks about:

How she first discovered Miles was going to have a congenital heart defect. 

The challenges of diagnosing the heart condition and then delivering Miles. 

She talks about the events leading up to Miles' first heart surgery.

Brooke also talks about some of the symptoms Miles experienced leading up to that first heart surgery, such as falling asleep while eating and not gaining weight. 

In addition, Brooke talks about her stay in the hospital and Miles being put on a temporary pacemaker after his heart surgery. 

The day after Miles was discharged from the hospital he had more complication from his heart surgery. 

Brooke shares how her older daughter was affected while her son was staying in the hospital and upon the family's return home.  

Plus, she shares advice on what would have helped her while she went through the entire experience along with advice to other parents. 

She also shares why she wishes she could have met another family with a heart baby prior her son's heart surgery. 

 

Resources

The Kentucky's Finest Festival - November 19-20, 2016 - 20% of the ticket sales will go to the Children's Heart Foundation For Research.  https://www.facebook.com/events/884419778331338/

Braveheart - https://www.facebook.com/kosairchildrens.bravehearts - a support group of local families united by our child's fight for life after being born with a complex congenital heart defect that required heart surgery.

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