12: Laura Carpenter- Talks About Her Daughter, Who Had One Of The Rarest Forms Of Congenital Heart Disease And Losing Her Child

In part 1 of Laura Carpenter's interview, she talks about her experience with her child, who had one of the rarest forms of congenital heart disease called truncus arteriosus, plus why she is so determined to help other families who have children with congenital heart disease.

Here are some of the topics Laura talks about:

*Laura shares about when her child was first diagnosed with CHD.

*How she and her husband's life changed once their daughter was diagnosed with CHD.

*How they had to move to Philadelphia for her daughter to be born.

*What it is like to deliver your baby at Children's Hospital of Philadelphia (CHOP)

*The stress and anticipation of handing your child to a surgeon for a heart operation.

*The daily routine her family had while at the hospital.

*Being discharged and taking her child home.

*What her normal family routine was like once she was home.

*Attending the first follow-up cardiology visit

*How differently she and her husband were processing the grief of having a child with a medical condition.

*Then Laura describes the one day that changed her life forever.

*Finally, in this episode Laura talks about preparing siblings for their brother or sister's surgery.

Join us for Part 1 of Laura's interview.

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2 Comments

  • Sally Tortorella

    Reply Reply September 18, 2016

    I would love to talk to Laura. My 18-year-old daughter was diagnosed with truncus arteriosus, double aortic arch and the VS double aortic arch and a VSD. I have never met or heard of anyone else in my life that has the same rare diagnosis. Please put us in touch

  • Mia Toro

    Reply Reply September 19, 2016

    I have a five year old boy with truncus arteriosus. So much of what you said hit home. I’m so sorry your Gweneth earned her wings much too soon.

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