56: Jodie Lemacks – CHD Mom and Advocate Who Connects and Supports CHD Families Throughout The USA.

Jodi shares her story about her teenage son who was born with congenital heart disease. Jodi shares her experience about when her son was first diagnosed with CHD. She talks about the delivery and the first two heart surgeries. Jodi talks about the overwhelming stress that she experienced leading up to her son’s Fontan heart…

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55: Kristine Slovis – CHD Mom & Organizer of the Super Hero Heart Run In Virginia

On this episode of the podcast Kristine talks about her journey with her son who has CHD and how this has inspired her to become an organizer of the Super Hero Heart Run in Virginia. Kristine talks about her pregnancy and when the doctors first told her that her son’s heart was not forming correctly.…

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54: Kelli Kelley – Holding The Hands Of NICU Families

On this podcast, Kelli talks about how after both of her newborn children spent time in the NICU. Kelli shares the story of her son’s birth and his 4-month stay in the NICU.   She talks about their experiences there.   She talks about the challenges she overcame being a first-time mom with a child…

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53: Amanda & Patrick Reck -Life After Their Son’s Heart Transplant.

Amanda and Patrick talk about their son who has been through two heart surgeries and a heart transplant. They talk about their son being born and how they were unaware that he had congenital heart disease. They talk about the first 24 hours in the hospital and then how their son coded while being transported…

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52: Kelley Kassay: Providing Toys To Children In The Hospital In Honor Of Her Son!

Kelley talks about her son, Mason, who was first diagnosed with cancer at age 5 and how his passing at age 11 inspires her to help other families and children in the hospital. She talks about her son’s experience with cancer along with what inspired her to start Mason’s Toybox.   She shares how her non-profit…

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Episode 51- Alyssa Riedl – Life Is Moving Along -8 Children – 2 Biological and 6 Adopted!

  On this podcast, Alyssa shares her story of having 2 biological children and then adopting 6 other children.   Alyssa shares the frightening story of when her first biological son coded after he was born and then experienced seizures. She also shares the story of her daughter’s birth at 27 weeks and their long stay in the NICU.   She then…

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50: Kelly Blumenthal – CHD Mom, Advocating for Families and Children, Fundraising, And Always Inspiring!

On this episode of the podcast, Kelly shares her story and why she is so passionate about helping other families, fundraising, and doing anything she can to spread awareness about congenital heart disease!   Kelly discusses the infertility issues she and her husband experienced prior to having their first son. She talks about becoming pregnant with Finn – just 5 months after her first…

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49: Tara Tench- The Challenges of Hypoplastic Left Heart Syndrome

Tara shares her story about her daughter who has hypoplastic left heart syndrome.   She talks about her pregnancy, when her she first learned that her daughter was going to have congenital heart disease, and the moments leading up to her daughter’s birth.     She discusses her stress level during her daughter’s first heart surgery, and…

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48: Jolene Philo-How Trauma and PTSD Affect Children Who Experience Long Hospital Stays and Surgeries.

  Jolene talks about her journey with her son and how she discovered how his surgeries and hospital stays early in life affected his long term development, causing trauma and PTSD. She shares the trauma her son experienced after birth, involving flights to two different hospitals in two different states for surgery. She talks about…

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47: Kayla Aimee – Her Daughter Born at 25 weeks, Stayed 6 months in the NICU, and Thriving Today.

On this podcast episode, Kayla shares her story about her daughter: born at 25 weeks in her pregnancy, her long 6 months stay in the hospital, being away from her family, and how her daughter has overcome all the odds and is now thriving and at the head of her class. On the podcast, Kayla…

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