20. Danielle Love- Caring For Her Son Who Has Spastic Cerebral Palsy.

Danielle shares her story about her son who has spastic cerebral palsy.    Danielle talks about being diagnosed with an autoimmune disease called Graves’Disease. She shares how Graves’ Disease led to a thyroid storm and how the thyroid storm affected her.   When Danielle was 32 weeks pregnant the ultrasound showed that something was different, but doctors weren’t sure…

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19. Dr. Kenneth Norwood- Helping Children With Complex Medical Challenges Develop Cognitively, Physically, Emotionally, and Socially.

Dr. Norwood, a developmental pediatrician, focuses on helping children who either have serious ongoing medical challenges or at some point in the child’s life has faced a serious medical challenge. Some of the topics that Dr. Norwood discusses are: Why he became a developmental pediatrician What the difference is between a pediatrician and a developmental…

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18: Brooke Wilkerson- Caring For Her Son Who Has Tetralogy of Fallot  

In this episode, Brooke shares her story about her son Miles who has Tetralogy of Fallot.  Brooke talks about: How she first discovered Miles was going to have a congenital heart defect.  The challenges of diagnosing the heart condition and then delivering Miles.  She talks about the events leading up to Miles’ first heart surgery.…

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17. Meghan Wagoner- A NICU Nurse Talks About Caring For Newborn Babies In Critical Condition.

http://traffic.libsyn.com/walkingwithfamilies/Walking_With_Families_Episode_17_Meghan_Wagoner.mp3   In this podcast episode, Meghan Wagoner, who is a NICU nurse talks about caring for newborn babies in critical condition that are in the neonatal intensive care unit. She talks about: -Why she became a nurse. -The training involved in care for babies in the NICU. -The difference between the care of a…

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16. Catherine Campbell – Living Life With A New Heart.

In this episode, Catherine talks about her daughter’s journey with congenital heart disease. She talks about when she first found out about her daughter’s heart condition. How she chose a pediatric cardiologist to care for her daughter’s heart. The challenges of her daughter being born pre-mature with congenital heart disease. The stress of the going…

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15. Dr. Jeffrey Vergales-A Pediatric Cardiologists Talks About Caring For Children With Single Ventricle Hearts In Between The Blalock -Taussig Shunt Surgery and the Glenn Procedure.

In this episode, Dr. Vergales, who is a pediatric cardiologist, talks about many different aspects of caring for children with a single ventricle heart. In addition, he goes into great depth about caring for children with single ventricle hearts in between the Blalock-Taussig Shunt Surgery and the Glenn Procedure. In this interview, he discusses: -Why…

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14: Lee Gibson- Overcoming The Challenges Of One Of The Rarest Types Of Cancer.

September is Childhood Cancer Awareness Month, so in this week’s podcast Lee shares his story about his son, who at 3 years old, was diagnosed with one of the rarest types of cancer. Let’s talks about: -His son being diagnosed with one of the rarest forms of cancer. -The challenges of being in the hospital…

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13: Laura Carpenter- Part 2-Talks About Congenital Heart Disease and Shares Resources To Help Parents

In this week’s episode we conclude our interview with Laura Carpenter.  In part 2 of Laura Carpenter’s interview she talks about: How children process stress through play  Children and their resilience CHD the lack of awareness of local pediatricians and pediatric emergency rooms. Ways to be prepared if your child has to go to the ER.…

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12: Laura Carpenter- Talks About Her Daughter, Who Had One Of The Rarest Forms Of Congenital Heart Disease And Losing Her Child

In part 1 of Laura Carpenter’s interview, she talks about her experience with her child, who had one of the rarest forms of congenital heart disease called truncus arteriosus, plus why she is so determined to help other families who have children with congenital heart disease. Here are some of the topics Laura talks about:…

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11. Dr. Jonathan Swanson – A NICU Doctor Talks About Caring For Newborn Babies With Complex Medical Conditions

In this episode Dr. Swanson, a neonatal intensive care doctor (NICU) at University of Virginia Children’s Hospital talks about:   What inspired him to become a neonatologist. Shares specific types of training NICU doctors need to care for a wide variety of children born with complex medical conditions. Why the child and parents benefit, if the…

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