30: Key Dunston – Shares Her Story About Her Daughter Who Was Born During Her 28th Week Of The Pregnancy And Who Weighed Only 3 Pounds.

Key talks about how her daughter was born during her 28th week of pregnancy. She talks about the challenges her daughter faced after she was born. She also talks about the stress of being in the NICU for 6 weeks. Key shares how she spent her time while in the NICU. She talks about how…

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29: Melody Johnson Shares Her Daughter’s Experience: A Life Saving Kidney and Liver Transplant

In this episode Melody Johnson shares the story of her daughter’s kidney and liver transplant. Melody shares her daughter’s diagnosis with Polycystic Liver Disease at 6 months old, with a subsequent diagnosis of liver fibrosis at age 1. She talks about how kidney and liver failure led her daughter to have high blood pressure, and…

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28: Dr. Sara Rasmussen-A Pediatric Surgeon Shares Why She Is Motivated To Make A Difference In So Many Children’s Lives.

In this episode, Dr. Sara Rasmussen talks about her job as a pediatric surgeon and why she is so driven to make a huge impact on so many children and their family’s lives. Dr. Rasmussen shares: What inspired her to become a pediatric surgeon. How she spends her time each day. UVA recently partnered with…

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27: Dr. Kimberly Dunsmore – Caring For Children With Cancer And Blood Disorders.

Dr. Dunsmore treats children for any type of disease that has to do with the blood or any type of cancer Dr. Dunsmore shares that between 10,000 and 12,000 children will be diagnosed with cancer each year. This represents an increase in diagnosis rates since tracking first began, but survival rates have increased as well.…

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26: Annie B. Garman – Discovering Your Daughter Has Hypo Plastic Right Heart Syndrome While Living In Iceland.

Annie talks about finding out that her unborn daughter was going to have congenital heart disease while her and her family were living in Iceland.   She talks about having to return home after learning about her daughter’s heart defect.   Also, she shares her emotions after learning about the heart defect.   Annie talks…

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25. Rebecca Mannion -Her Daughter And Dilated Cardiomyopathy

Rebecca shares her story about her daughter who has Dilated Cardiomyopathy. She talks about how her daughter’s heart disease was not discovered until she was four months old. Plus, Rebecca talks about her journey in the hospital and having her daughter placed on the heart transplant list. Rebecca shares her experience of having her daughter…

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24. Dr. Rebecca Scharf- Understanding How Children Develop Who Have Medical Complexities And Special Health Care Needs!

Dr. Rebecca Scharf is a developmental pediatrician at the University of Virginia Children’s Hospital.  She talks about the 3 aspects of how she helps children with medical complexities such as critical care, education, and research. Discusses the 4 different clinics that she oversees that help children. How a family friend who was a doctor in…

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23. Molly McMunn Korte- How Autism Impacts Her Almost Two Year Old Son.

Molly talks about her son and when he was first diagnosed with autism. How their son’s diagnoses impacted her and her husband. She reveals some of the symptoms that that her son displayed prior to being officially diagnosed with autism. Plus, she talks about the actual appointment and how the doctor diagnosed her son with…

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22. Annaleci Lamantia- The Story Of A Teenager With Truncus Arteriosus Type 2

Annaleci shares her story about growing up with congenital heart disease known as Truncus Arteriosus Type 2 and how it has affected her over the years. She discusses her parents and how they have helped her throughout her life. She shares how she beat the odds of surviving her first heart surgery. Annaleci describes her…

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21. Lauren Gray – Purpose Driven Because of Congenital Heart Disease

Lauren shares her story and her perspective as an adult who has lived with congenital heart disease her entire life. Lauren talks about: How after she was born she was first diagnosed with congenital heart disease. Lauren talks about her first surgery. How growing up with congenital heart disease affected her in school, activities and…

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