34: Amy Mast Basken- How Her Son, Who Has CHD, Inspired Her To Start The Pediatric Congenital Heart Association.

Amy shares her story about her son who was not diagnosed with CHD until after he was discharged from the hospital. 

She talks about his heart surgery and his time in the hospital. 

She also talks about caring for her son once he was home. 

She talks about the potential future heart procedures that her son may need. 

Further, she discusses how finding a good support network is vital. 

Amy then reveals how she worked with the Mended Little Hearts National Organization, the American Heart Association, and the Children's Heart Foundation.

She discusses how her work with these organizations led her to start her own organization - the Pediatric Congenital Heart Association!  

In addition, Amy talks about what helped her the most while her son was in the hospital. 

She talks extensively about how she is working with the hospital to provide transparency within their pediatric heart program when dealing with the parents of children with CHD. 

Plus, she explains the differences between her organization and the other national heart organizations.

 

Join us for this podcast episode as Amy shares her story! 

 

Resources 

 

Pediatric Congenital Heart Association:  http://conqueringchd.org 

 

 

Children's Heart Foundation  - http://www.childrensheartfoundation.org/

 

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